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Note: "(on site)" means this information is available on this website through the link provided.
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Links and More Information
Chronic Fatigue Syndrome (CFS)/Orthostatic Intolerance (OI)
ME/CFS Guidelines: Management Guidelines for General Practitioners (on site)
A guideline for the diagnosis and management of ME/CFS in the community or primary care setting
Myalgic Encephalopathy (ME)/Chronic Fatigue Syndrome (CFS)
This is in PDF/Adobe Acrobat format. (110 KB)
A taskforce of South Australian clinicians and others with experience in ME/CFS have developed this more succinct set of guidelines for GPs and other medical practitioners. Its focus is on the basic diagnosis and management of this condition in the community or primary care setting.
Developed in South Australia June 2004
Posted with permission from the author.
No Other Illness Like This One: Dr. Bell Finds Dramatic Abnormalities In CFIDS - Part 1 and Part 2 (on site) by Joan S. Livingston
This article is about low blood volume and Orthostatic Intolerance (OI) in Chronic Fatigue Syndrome (CFS) and was originally posted at chronicfatigue.about.com in July 2000.
The CFIDS Association of America
Working to conquer chronic fatigue and immune dysfunction syndrome.
The CFIDS Association of America provides users access to a generous collection of resources, including: information on the diagnosis and treatment of chronic fatigue and immune dysfunction syndrome (CFIDS); resources for patients, caregivers, medical professionals, the media and young people with CFIDS; and information about Association-led programs aimed at empowering the patient and eradicating the illness.
www.cfids.org
Copyright © 2006, The CFIDS Association of America, Inc.
- CFIDS Fact Sheet (on site)
www.cfids.org/about-cfids/fact-sheet.asp
- CFIDS Symptoms (on site)
www.cfids.org/about-cfids/symptoms.asp
- Orthostatic Intolerance and CFIDS Fact Sheet (on site)
www.cfids.org/about-cfids/oi-and-cfs.asp
- Diagnosis: Orthostatic Intolerance (OI) (on site)
www.cfids.org/about-cfids/orthostatic-intolerance.asp
- Curriculum expands awareness - CFS: Primary Care Basics (on site)
www.cfids.org/archives/2002rr/2002-rr1-article01.asp
Dr. David S. Bell’s website
offers more recent issues of the Lyndonville News newsletter and the entire book Faces of CFS.
www.davidsbell.com
More resources, articles, and books about Chronic Fatigue Syndrome (CFS) by David S. Bell, MD, FAAP
- CFIDS Disability Scale (on site)
- The Difference between Activity Limitation and Fatigue (on site)
This includes an evaluation section called Daily Activity Ratio.
- Florinef - clinical experiences (on site)
- CFIDS, The Disease of a Thousand Names (1991)
- The Doctor's Guide to Chronic Fatigue Syndrome - Understanding, Treating, and Living With CFIDS (1994)
- A Parents' Guide to CFIDS - How to Be an Advocate for Your Child with Chronic Fatigue Immune Dysfunction Syndrome (1999)
- Faces of CFS - Case Histories of Chronic Fatigue Syndrome (2000)
The Pediatric Network for Chronic Fatigue Syndrome, Fibromyalgia, and Orthostatic Intolerance
In the Articles section, this site includes archives of some articles of The Lyndonville News newsletter, many of which were written by David S. Bell, MD, FAAP.
www.pediatricnetwork.org
[Note: As of May 2011, this link is not working.]
Autonomic Disorders Rare Disease Consortium
This is a group of experts who are collaborating to better understand and treat these diseases. Information about various autonomic disorders and opportunities to participate in new research studies are available at this website. It also includes a registry to join and be notified about future research studies.
http://rarediseasesnetwork.epi.usf.edu/ARDCRC/
Personal Links
These are ministries that have helped me or I have gotten to support in some way.
Would you like to know my God? He has helped me through all of this. Pray this prayer. - www.kcm.org/real/index.php?p=salvation
Kenneth Copeland Ministries - www.kcm.org
Joyce Meyer Ministries - www.joycemeyer.org
Mercy Ministries is a non-profit organization for young women who face life-controlling issues. We provide residential programs free of charge designed to address the whole person: spiritual, physical and emotional. Our non-conventional approach to the underlying issues changes more than behavior; the Mercy Ministries program changes hearts and stops destructive cycles.
Our program includes life-skills training and educational opportunities that help ensure the success of our graduates. Our goal is to have each young woman not only complete the program but also discover the purpose for her life and bring value to her community as a productive citizen.
www.mercyministries.org
Copyright © 2005, Mercy Ministries of America
Project Linus is a 100% volunteer non-profit organization with a two-fold mission:
First, it is our mission to provide love, a sense of security, warmth and comfort to children who are seriously ill, traumatized, or otherwise in need through the gifts of new, handmade blankets and afghans, lovingly created by volunteer "blanketeers."
Second, it is our mission to provide a rewarding and fun service opportunity for interested individuals and groups in local communities, for the benefit of children.
With chapters in all 50 states, Project Linus continues to grow. Blankets are collected locally and distributed to children in hospitals, shelters, social service agencies, or anywhere that a child might be in need of a big hug.
www.projectlinus.org
Copyright © 2006, Project Linus
Angel Quilt Project (AQP), is a nonprofit, world-wide organization of cross stitchers and machine embroiderers.
We incorporate the designs onto hand-made blankets which we then donate to families with premature babies at over 200 hospitals here in the US, as well as another 100+ or so around the world.
www.aqphome.org
Copyright © 2006, The Angel Quilt Project